Something’s not right
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09-12-2022 05:38 PM
09-12-2022 05:38 PM
Untitled Yet...??
Not sure how to begin with this... My Mum has rapidly-progressing Parkinson's and also non-Hodgkin's lymphoma. She lives with Dad in a retirement village. It's hard watching this illness journey with her. Every time I see her she's weaker and more frail. Wondering about advice or tips etc. Or maybe just share. Sorry...clumsy at this as I've not been on here for a couple of years...
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09-12-2022 05:54 PM
09-12-2022 05:54 PM
Re: Untitled Yet...??
Hey @ButterflyWings - maybe @Shaz51 can share some of her experiences?
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09-12-2022 07:32 PM
09-12-2022 07:32 PM
Re: Untitled Yet...??
Hello @ButterflyWings how are you going today xxx
Has her docto suggested age care ho.e for your mum ??
I have been looking after my mum as her carer for years at home until she broke her hip in hospital, they took her to a bigger hospital where she got a new hip and then she got an infection, then Covid19 and now dementia
Through doctors assessment that mum needs. High care and home was not suitable any more for her
Finally have her back into our local aged care part of our local hospital
Here for you if you like to have a chat xxxx
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09-12-2022 10:56 PM
09-12-2022 10:56 PM
Re: Untitled Yet...??
Thank you for sharing, Shaz. Sometimes people forget that families need support too. 💜
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11-12-2022 10:47 AM
11-12-2022 10:47 AM
Re: Untitled Yet...??
How are you going today @ButterflyWings
In these situations we do forget about ourselves and what we need too , I do all the time xx
Sending you hugs and am here for you
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11-12-2022 05:09 PM
11-12-2022 05:09 PM
Re: Untitled Yet...??
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11-12-2022 05:38 PM - edited 11-12-2022 05:41 PM
11-12-2022 05:38 PM - edited 11-12-2022 05:41 PM
Re: Untitled Yet...??
@ButterflyWings no tips or advice unfortunately but wanted to say thinking of you and can relate in some way to all of that. For us the process of coronary heart failure is accelerating.
Beging a process of arranging care for my father in law who is in hospital but was at home with us. Has been a roller coaster week here not knowing how much time we have left. Happy to 'listen' if you need .
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12-12-2022 08:32 PM
12-12-2022 08:32 PM
Re: Untitled Yet...??
How are you @ButterflyWings - how's your mum?
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12-12-2022 08:34 PM
12-12-2022 08:34 PM
Re: Untitled Yet...??
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13-12-2022 06:05 PM
13-12-2022 06:05 PM
Re: Untitled Yet...??
Hey there @ButterflyWings
I'm sorry that you are feeling this way, and thank you so much for sharing how this experience is making you feel. I can tell that you care so deeply for your family and your mum.
Please remember that as it may be really tough to go through this alongside your mum, it is really important to make sure that you are taking care of yourself too.
I've linked below a Peer Group Chat that we did we few weeks ago that highlights how you can take care of yourself, while caring or looking after someone else. Maybe this is something that could help with how you are feeling if you need any ideas of how to also channel some energy into looking after yourself.
Here is that Peer Group Chat link: https://www.sane.org/images/peer-support/chat-transcripts/Caring-for-Yourself-While-Caring-For-Someo...
Sending virtual hugs and I am here with you,
Amber22