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17 Mar 2022 09:04 AM
17 Mar 2022 09:04 AM
Thanks for replying @Emelia8
i see my community mh psychiatrist on Monday. I am really not looking forward to that appointment and have been considered not turning up. I am terrified that she is going to put me on a CTO cause of where things are at for me at the moment. I’ve taken a lot of steps backward this week and just really struggling with a lot of things. I’m not going to my gp appointment tomorrow. My usual gp is not going to be there and she has booked me in with one of her colleges who is a male. My sh wounds are high up on my thigh and I don’t feel at all comfortable with the situation.
If I do get to my psychiatrist appointment on Monday I will discuss my meds. I think maybe once I am asleep I am sleeping some better, it’s just the getting to sleep. I really want… need something that will knock me out quickly. It’s night times that I struggle the most. I still have the occasional nightmare. What she has put me on for nights and during the day seem to be helping in that regard. I am actually surprised that both times I have ended up in the emergency department cause of low bp they haven’t even considered taking me off that medication. I think if I can stay well hydrated it helps with my bp, but even that is a struggle for me at the moment.
im glad to hear that you time there has been of benefit in regards to your medication. It can be a really challenging thing to get all that right, but by the sounds of it, there have been some positive adjustments?
i have my support group this morning. Really don’t want to go. But don’t want to let them down. And we are doing our ‘hope boxes’ today. Not sure what that is, but sounds slightly interesting, so I’ll go for that. It’s the second last week too. Then I am catching up with a friend afterwards, before the new social activities lady that my case manager referred me to is coming around to go over the calendar with me. It all sounds fun, I just feel a bit overwhelmed by it all and I hate that they call the people that they engage with customers. I’d much prefer to be called a client?
anyhow, I need to get myself organised. Dragging my feet this morning. D had a big melt down this morning, so was slow getting her off to school.
Thinking of you @Emelia8 x
17 Mar 2022 10:27 AM
17 Mar 2022 10:27 AM
Sorry to hear you're having a hard time @Bow. Hope boxes sound promising.. might be like making future goals and looking forward. I know you have some future goals for your recovery and to help others in a similar situation to you. Might be something to focus on?
I'm wondering if you are able to ask to see the nurse for your dressings at the GP? You have a right to ask for what you need in that situation. Take care 💝
17 Mar 2022 01:57 PM
17 Mar 2022 01:57 PM
I had a nice time decorating my hope box this morning. Used a stencil to paint pink flowers on it. I was pleased with the finished product. We can put things in it that give us hope. We will finish them next week and we have to take along one thing to start it off. I will take a photo of me and my daughter.
I cancelled my Drs and nurses appointment for tomorrow. Just can’t do it. Don’t want to do it. It’s the I don’t care that did it. Sorry.
17 Mar 2022 03:21 PM
17 Mar 2022 03:21 PM
Hi @Bow ,
I'm hearing that you don't currently have the capacity to see your doctor and nurses tomorrow, I hope you're able to provide some care to yourself in the meantime 💛.
That hope box you have described sounds really beautiful, I'm wondering what else you will be putting in it?
17 Mar 2022 03:24 PM
17 Mar 2022 03:24 PM
I’d like to write this up and make it nice….
17 Mar 2022 03:28 PM
17 Mar 2022 03:28 PM
Brene Brown is so wonderful, that quote also resonates with me too @Bow 😊
17 Mar 2022 05:15 PM
17 Mar 2022 10:55 PM
17 Mar 2022 10:55 PM
As part of the butterfly collective I got an email today inviting people with a lived experience to submit expressions of interest to be part of a collaboration between BEING, NSW mh carers and the mh commission of NSW to co-design an evaluation framework to assess how the voices of lived experiences is important in peoples experiences in mental health services.
It would involve being part of 4x zoom meetings and 2x workshops.
It sounds really interesting and I’m thinking of applying, but one of the zoom meetings is in august, which, if all goes to plan, I will be overseas and you have to commit to attend all meetings.
18 Mar 2022 07:09 AM
18 Mar 2022 07:09 AM
Can you still do the Zoom meeting from overseas @Bow ?
18 Mar 2022 09:14 AM
18 Mar 2022 09:14 AM
I guess that could be a possibility @NatureLover it would be late at night. Thanks
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