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  • Author : Bow
  • Support : 1
  • Topic : Something’s not right
26 Mar 2025 07:11 AM
Senior Contributor

She could @Jynx  but health via my CM last week made it very clear that they are wanting me to use my voice. I had a chat with my CM and SW after my pdoc appointment last week and my SW mentioned how I have made these communication cards and asked whether it was possible to use them with them and my CM said no. There is no way to send pictures (via text or email) and that I just needed to use my words 😩 it is so very frustrating. 
my SW even went on to say that it’s often the case with people that she works with that when they don’t engage with the service they exist them cause they don’t want it anymore, but with me it is definitely not the case. I want the support, I need the support, but words are just too hard and that using these cards is how I can communicate what I am needing. 

it makes me angry @Jynx if only they would just give me a chance. I feel like I never have the opportunity to get very far cause we start doing hard stuff and I shut down. If they would just work with me how I need to do it then maybe I’d get past those initial few rocks and get momentum going. 
but no. 

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