Lived Experience Forum

[Sans911]

Goodnight sweet lil Sis @outlander 😴😴😴💜💜💜

[greenpea]

@outlander  Good night sweetheart 🙂 hoping you sleep well. Love peaxxx

[Snowie]

Good afternoon sis @Sans911 

Just coming past to give you lots of love and hugs.

Sitting with you sweetie 💌💌💌

[Sans911]

@Emelia8 - I've been over to your thread and I'm a bit overwhelmed with all the posts there. But I just wanted to say all the advice is great. I doubt your surgery will be cancelled, however, if you require a plastic surgeon, it depends on the availability of one on the day. If a double mastectomy is all that you need for now, and the reconstruction comes later, breast surgeons might be all you need. But there's the other factor of time too as a double mascetomy takes about 3 hours. It may mean they simply shift you on the list. So there still options yet.

But the sooner you let someone know, they can get onto checking it out and dealing with the situation. They certainly won't mess around if there's a new suspected tumour.

I know you're very, very scared however better to deal with it now then later as it could be so much worse right?

Use the Breast Care Nurses as much as you need, as well as your psychologist. You need that support.

A double mastectomy is a huge thing, but the surgery options today are quite good, including replacing breast tissue with fat from the abdomen. This gives you a very realistic and natural look and feel.

I wanted to add my support & I've been thinking of you almost every day. I'm following your story, but I'm just in a bad way myself right now so I don't post much atm. Hugs and love you sweetheart 💗💗💗

[Sans911]

@outlander @Snowie @Zoe7

You're all likely to be sleeping and resting but just letting you how much I love my sister's, and how grateful I am to have your support. Hugs and love to you all 💗💗💗💗💗💗💗

[Emelia8]

Thank you so much @Sans911 ... I really appreciate you making the effort to reply.

I will call the breastcare nurse shortly and talk to her about things.  And will take her advice.  Which I'm sure will be the same as what you and everyone else is saying. Yes I know you are all right. But right now, I just want to bury my head in the sand and wait for it all to go away.  Yes I'm scared!  But I also need to know for sure.  And if it turns out to be nothing to worry about, then it will all be good. Needless worrying.  And back on track for original surgery plans. This lump does feel quite different.  Unlike the other one which is like a little rock, this one isnt so distinctive, and a bit more mobile.  Maybe its just a cyst.  I recall my Mum used to get cysts occasionally.  That was prior to her cancer of course.

If I were to need double mastectomy and a reconstruction is needed ... it would have to be in Sydney.  A long way away, and not something I am prepared to do.  The surgeon I am with locally, is not a specialist breast surgeon, just a general surgeon.  Besides, I'm not sure I could go through all that you have had to since your surgery.  But I'm also thinking that if I'm this freaked out every time I find a lump from now on ... maybe its best if I have the lot off anyway?

Thank you so much for your support, and for thinking of me.  I realise you are not doing well right now, and not here as much as you may like.  I wish I could help in some way, and please know I am here to listen any time.  I may not have any advice, but I do care.

Much love and a big hug to you too.  I hope things improve for you very soon.

Emelia 💕

[Sans911]

Morning @Emelia8. You're very much in my thoughts today. Perhaps you won't have your answers today, but maybe you'll get some reassurance. You're a very smart, switched on woman.

My situation with my wounds is quite unique and unusual. It's extremely unlikely that you would have the same problem.

Big hugs for you today. I know you have many members here that care about you very much.

You don't have to answer this post. Do what you need to do. 💜💜💜💜💜💜💜

[Snowie]

@Sans911 lots of love and hugs back to my sister 💕💌💜

Hoping you got some rest last night 

[Zoe7]

The feeling is very mutual @Sans911 Hugs and love back 

I know things in your world are very difficult and that is also mirrored here on the forum but to me you are one of the most amazingly resilient and caring people I know. It is hard to find our place in this world at the best of times but dealing with our own MH battles, feeling lost in all that we do and where we are further highlights just how tough it can be. Please know though from my perspective you have so much to give, are so wise and deserve to feel that you belong, are accepted and respected by all around you. If they cannot find that within themselves then it is not you that is the issue - it is entirely on them. You show us here nothing but respect, empathy and your vast knowledge and without you it really is not the same forum. I very much miss you but also want you to know that I get it, been there and it has only been time and an adjusting of my own expectations that has begun to carry me forward again. You to can do the same Hon because you are strong, determined and worthy of both that connection and support ...when you are ready there will ALWAYS be space here for you @Sans911 and friends that will continue to love and care for you ...because you not only matter but mean so much to us. 

[Sans911]

@Zoe7 - you are so articulate and smart. The words you write/say come straight and true from the heart. What a privilege is it to know you.